Infliximab #11 – Ongoing Troubles…

“I just know that who I am now, isn’t who I want to be. This is not the quality of life I am willing to settle for. So maybe I need to make a strong and powerful decision that will benefit me in the long run.”

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March Madness & MXT

he described my antibodies as thus; “there is a limit of 200 on the scale, you are *way* above it”. Simply put, my body is fighting the drug, as soon as it comes into my system.

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Infliximab #9 and #10

” It’s now become more about the psychological warfare of not knowing what is causing me to feel like this.”

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Liver, PCOS and IBD – What a combo!

I am awful at keeping things up to date recently, but I’ve had alot to mull over and consider.   Since Infliximab #8 I’ve been to the hospital for various appointments. I’ve seen my Liver specialist, had a small bowel MRI done, finally seen a Rheumatologist, my gastro, a dental surgeon and my GP. None of these things are new nor are they unrelated; they have all somehow become interlinked. Typical. So after my last infusion, I spent my half term building up to a small bowel MRI. Nothing about it was pleasant, but I was suffered from the tail…

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Infliximab #8

Yep, its been the two month wait for Infliximab. Feels longer; it was overdue by a week, caused by scheduling problems. Alas, I attended the hospital yesterday; after a problematic and rough week or so; very glad to be there and finally getting my infusion.   Prior to this, I had two lots of bloods taken. Both were okay, not as good as usual – WCC was up along with my CRP but my LFTs (and associated liver function tests) were falling FINALLY! – but what was troublesome to my GI, IBD nurse and infusion nurse, was these tingling sensations…

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