Day Eleven – Theme Song

Theme Song. Imagine your health focus or blog getting its own theme song. What would the lyrics be? What type of music would it be played to? John Mayer – War of My Life – This is the acoustic version. It is beautiful. I am sad to say that the song that best defines my life is this song. Its…

Sometimes a simple phrase like this gets me through an emotional period. Like after work today, I just wanted to cry. Not for any particular reason, I just felt overwhelmed and done for the day. I wanted to feel weak for 5 minutes after having holding it together all day long. I have to go back and do it all…

Hello! My name is Louise and I have Crohn’s Disease, a form of Inflammatory Bowel Disease (IBD).

I was diagnosed in September 2011 after months of symptoms that didn’t really make much sense. In the years since; I’ve had many hospital admissions, tried all of the medication options open to me at the time but chose to have surgery in 2016 to remove a large narrowing in my small bowel. Three months later, I had my colon removed and I now have a temporary ileostomy.

Day Ten – Dear 16 Year Old Me

Dear 16 year old me. Write a letter to yourself at age 16. What would you tell yourself? What would you make your younger self aware of? I had this post open for almost a hour before starting typing. I thought long and hard about what I was like at 16, what was most important to me 8 years ago.…

Everywhere

taletreader is completing the HAWMC and posted this yesterday. I read it and it got me thinking about ‘everywhere’. It is hard to explain to people how much your chronic illness affects your life. It’s constant. It is everywhere. Even in the nooks and crannies you hadn’t thought about. Under rocks you hadn’t checked previously. It seeps through your bones…

Things I’ve learned:

fibromyalgiaproblems: Not knowing what to say isn’t a good reason to not say anything.

Ron: One person couldn’t feel all that, they’d explode! Hermione: Just because you have the emotional range of a teaspoon.. A classic Potter quote. Very apt. I wonder sometimes how much I must look like a Crohnie. Then, as soon as the thought has escaped into my consciousness, I laugh. How stupid! I can’t look like something, especially with an…

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