February 2019

Being Kept on My Toes   Stoma wise; prescription of my supplies has now been updated but still having some issues. One is the lack of barrier being authorised by my GP – on my to do list for an appointment for my ‘medication and appliance review’ with a GP in mid March. I do have some barrier to use in the meantime; samples from other companies because my previous favourite has been failing alot these last couple weeks. So, whist I wait for my repeat Px to be updated correctly, I will find a new product that suits. So that is my…

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Extra Intestinal Manifestations – The Bones

This new series looks at the effects IBD can have beyond the gut. As a whole, extra intestinal manifestations of IBD occur when the disease is not controlled well enough with conventional medications. However, the side effects of particular medications can produce new symptoms which would mirror or mimic these extra intestinal manifestations (EIMs). For all of the information provided in this series, I have gathered resources and broken them down, putting them into patient speak. Each post comes with a disclaimer too (see the end of the post) so if you have concerns, you should see your specialist in all instances.  The Bones…

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Extra Intestinal Manifestations – The Joints

This new series looks at the effects IBD can have beyond the gut. As a whole, extra intestinal manifestations of IBD occur when the disease is not controlled well enough with conventional medications. However, the side effects of particular medications can produce new symptoms which would mirror or mimic these extra intestinal manifestations (EIMs). For all of the information provided in this series, I have gathered resources and broken them down, putting them into patient speak. Each post comes with a disclaimer too (see the end of the post) so if you have concerns, you should see your specialist in all instances.  The…

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Life Lately | Liver Biopsy

Last chance diagnostic saloon Yesterday I went in for a biopsy on my Liver. If you’ve been a reader for a while, you’ll know that I’ve been seeing a Hematologist since late 2017 and as of yet, we have yet to really pin point why my LFTs – Liver Function Tests – have continued with their trend of being very high since 2014. The transfer of my notes from my specialist liver consultant at the QE in Birmingham, who saw me from late 2014 until 2017, took a while to get to Peterborough, so I’ve enduring more of the same testing as before; 3…

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My Love for Self Care

Here comes that word “self care” again.   It seems that self care has morphed into what can sometimes be seen as being selfish, spending excesses beyond your means and overextending your limits; to create a perfect excuse for ‘treating yo’ self’ to anything and everything. And while elements of those expressions do exist, caring for yourself is something we shouldn’t have to feel overwhelmed by or think negatively about. When done right, for me and only me, I adore self care. It was easier in the years before chronic illness, to take time for myself. It was purely seen as taking a…

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