November Goals

How did October go? Whilst I felt generally well during the month, I also felt very unwell. Not unwell enough to really see my IBD team but enough for it to interfere with working and life. I spent a few days of each week off from work and spent it in bed. Yes, actually resting and sleeping! I know, unheard…

October 2018

October; the new LIFE chapter   Stoma wise; it’s been leak city of late. Probably due to a box of defective bags; of which I’ve finally taken out of my supplies for good now! And whilst it’s been like this, I’ve been able to handle the watery output, the soreness and the very full bags during the night well too.…

Hello! My name is Louise and I have Crohn’s Disease, a form of Inflammatory Bowel Disease (IBD).

I was diagnosed in September 2011 after months of symptoms that didn’t really make much sense. In the years since; I’ve had many hospital admissions, tried all of the medication options open to me at the time but chose to have surgery in 2016 to remove a large narrowing in my small bowel. Three months later, I had my colon removed and I now have a temporary ileostomy.

Life Lately | Change, Change, Change

I’ve been pretty quiet here of late. Most of that is due to moving and all the emotions that brings up… Some of it is purely down to lack of anything interesting to write or share with you. But it has been troubling me; not having this creative outlet when things get tough. You see, this week, whilst it’s been…

October Goals

How did September go? On the face of it, it feels like a big fat fail because I’ve been sick for more than half of the month. Which meant everything – literally everything  – took a back seat whilst I tried my best to get better. It seemed as I got one thing under control, my body would find something new to…

September 2018

Oh September, you are my new August.   Stoma wise; this little one has not causes me one ounce of grief. Honestly, she has held it down when my IBD was flaring and causing my output to vary so damn much, but nope, bag stayed put and I ever got a few of days more out of several  bags when I…

Biological Treatment, Gratitude and Being Comfortable in Hospital

A year in the making. Last year, my September was tough. It was a positive consequence of my August and the decisions myself and my IBD team made to get me well again. A quick recap – View this post on Instagram #throwbacktuesday 🙈🙊 • • • This time last year I was one month post op from my subtotal…

Taking Steriods for an IBD flare up whilst living with …

Disclaimer: this is an expanded version of a previous post – IBD Basics: Corticosteriods which will now cover how to take steroids, how they work within the digestive tract and how this affected when having a stoma.    How do corticosteroids work? Corticosteroids are potent anti-inflammatory agents for moderate to severe relapses of both UC and CD. They have no role…

What are the Early Warning Signs of an IBD Flare …

Most of the time the cause of a Crohn’s flare is unknown. But the most common causes of flares include: Non adherence: Not taking medications as instructed Medications: Taking a non-steroidal anti-inflammatory medicines (NSAIDs) such as aspirin  and ibuprofen Diet: Eating too much of foods that the bowel can’t process or handle Other possible causes of flares include: Smoking Alcohol Stress…


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