Dealing with the Dark Cloud of Depression While Taking on …

No one feels their best when they are unwell, and this is no different for those with chronic illness. There is an ebb and flow to anything chronic – meaning there are good and bad days – but what happens when your bad days outweigh your good days? I hit rock bottom six months into my IBD diagnosis. I struggled to find a treatment plan that worked. This involved months of being in and out of hospital. I tried very hard to be positive, but I was sinking. I refused help, I didn’t want to talk about it and I…

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August Goals

How did July’s goals go? Here is what I set myself for the month of July: GOALS: Monitor my IBD symptoms and keep track of ostomy issues. Keep on top of my wound as it gets smaller. Plan some new content. TASKS: Return to Work under a phased fit note. No sense in rushing to go back to ‘normal’ yet. Keep my hydration levels at an optimum. Actually make a start on a new project proposal from last month! Let’s recap… Let’s begin with how Month Four of Recovery went. I honesty had expected to go back to work in July…

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July 2019

Let’s Return. Stoma wise; things have been running smoothly with the stoma in July. I’ve noticed abit of weight loss and this means my bags fit abit better than normal. However, the bloat from the veggies and salads prominent in the summer months, have meant that occasionally I get some nasty partial blockages. They have been solved by home remedies so nothing too dramatic to report. Apart from some sore skin from an old template, my skin has been pretty well protected during the heat this month so I’ve seen a greater length between changes. IBD wise; fatigue has been…

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Do I Consider Myself Disabled?

Inspired by the KTMY post ‘Am I Disabled? Why you should define chronic illnesses as a disability’ Does ‘Invisible Illness’ Equal ‘Disability’?   Controversial but a hotly debated topic for those within the chronic and invisible illness community. Lots of questions get raised such as: What is a chronic illness?  What is an invisible illness? Should this conditions come under disability? What exactly is disability? How do we measure this? How does labelling those with chronic and invisible illnesses as ‘disabled’ impact on them? How do you define your own disability if you have an chronic or invisible illness? I’ll try…

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Pain: When does Acute turn into Chronic?

Pain. It’s all relative. It was last Spring and I had just started on a new pain relief medication, after a stint in A&E. I was already on Amitriptyline and now we were adding Gabapentin into the mix. I had been living with my rectal stump for almost eighteen months at this point and every day it was getting more and more uncomfortable. With it’s intimate location, I was limited to what I could take to ensure I could get some respite from the pain. I’d also been doing steroid enemas to help with the mild inflammation from a scope…

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