IBD Patient Involvement in Research Day

Something I had never really considered before was; How much involvement do patients have with research within the scope of their conditions? Turns out, lots. Why is this important? Patient & Public Involvement (PPI) is something that happens within all clinical research or clinical trial. And when you think about it, it makes sense – why would you research something,…

The What and Why: Inflammation & CRP

What is Inflammation & CRP? Inflammation is the process in which the body’s white blood cells and substances they produce protect us from infection with foreign organisms, such as bacteria and viruses. CRP – C-Reactive Protein is the most sensitive ‘acute phase protein’ and is the top choice in most situations when detection or monitoring of the acute phase response is…

Hello! My name is Louise and I have Crohn’s Disease, a form of Inflammatory Bowel Disease (IBD).

I was diagnosed in September 2011 after months of symptoms that didn’t really make much sense. In the years since; I’ve had many hospital admissions, tried all of the medication options open to me at the time but chose to have surgery in 2016 to remove a large narrowing in my small bowel. Three months later, I had my colon removed and I now have a temporary ileostomy.

May 2018

May; The bringer of PAIN May has always been a troublesome month for me. In the past; I’ve had surgery in this month, felt the worst pains in my IBD diagnosis and found working during those times very difficult. So May, has always been a low month. And this year was not exception. Stoma wise; Priscilla has largely been trouble-free…

Ostomy Uncovered: One Piece v Two Piece Systems

Ostomy Bags are often referred to as ostomy pouches or ostomy appliances. They come in three different types and with numerous options. The three types of ostomy bags are colostomy bags, ileostomy bags and urostomy bags. Within these types of ostomy bags there are many variations. Below is the comparison of a one versus two piece system. Before we begin,…

IBD Basics: Methotrexate

What is Methotrexate & Why is it important? Methotrexate is part of a group of medication called immunosuppressants. They work to help  reduces inflammation in the body by dampening down the activity of the immune system. It works particular well at controlling the inflammation in the gut, helpful for IBD. As IBD is an autoimmune response to too much active…

Ostomy Uncovered: Blockages

What is a ostomy blockage? An ostomy blockage is when a stoma becomes blocked. This can happen for many reasons, some simple and easy to resolve, others abit more tricky. But, in any circumstances, ostomy blockages should not be taken lightly. Symptoms are: Thin, clear liquid output with foul odour Cramping abdominal pain near the stoma Decrease in amount of…

IBD Basics: Immunosuppressants

What are Immunosuppressant & Why are they important? Immunosuppressants are drugs which damped down the immune system. They can also be called Immunomodulators; as they modify the immune’s response to a proposed threat to the body. IBD is an auto immune disorder, in which the immune system over reacts to inflammation. The cause is still unknown, but treatment plans usually look…

IBD Basics: Azathioprine & Mercaptopurine – 6-MPs

What are 6-MPs? & Why are they important? Azathioprine and Mercaptopurine are members of the thiopurine family of medication, and they are used to treat both UC and Crohn’s disease; the most common types of IBD. Whilst they get used for both types of IBD, 6-MP’s are more widely used in UC, but only by a small margin. 1 in 5…

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