Crohns & Colitis Awareness Week – December 3rd: IBD and Mental …

Part of the week of daily blogs for #crohnsandcolitisawarenessweek There, I said it. Once you say it outloud, it’s like duh of course it does but that is as far some go. It’s sort of expected for something some internal to affect your mind. And whilst that’s good to recognise, more needs to be done. If there is counselling for a cancer diagnosis, why is there nothing similar for IBD diagnosis? I appreciate and understand that a cancer diagnosis is a devastating blow and comes suddenly and swiftly for some. But, in a smilier vein, so does IBD. And as we…

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Crohns & Colitis Awareness Week – December 2nd: IBD Stigma

Part of the week of daily blogs for #crohnsandcolitisawarenessweek What does having IBD mean? It means talking about poo. It means discussing bodily functions with specialists. It means enduring testings on your digestive system. These are not great experiences, no matter how long you have been diagnosed or how many you’ve had to go through. It means getting diagnosed. It means having a conversation with a Gastroenterologist or an IBD nurse about your condition and what they intend to do to treat it, in whatever status it’s in. It means taking medications – some of which can cause some pretty…

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December Goals

How did Novembers goals go? I felt very unwell this month, I won’t lie. Unwell enough to really need to see my IBD team but unable to get some face to face time, and several missed opportunities to talk to them. Everything that was niggling at me in October came full force in November – hitting me square between the (metaphorical) eyes. I spent quite alot of time off work trying to get things under control. Alas, that was proved pointless – I struggled to get my stump under control and it was not helped by my Vedolizumab infusion. I…

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Crohns & Colitis Awareness Week – December 1st: What is IBD?

Part of the week of daily blogs for #crohnsandcolitisawarenessweek What are Crohn’s & Colitis? Crohn’s Disease and Ulcerative Colitis are the major categories of inflammatory bowel diseases (IBD). IBD affects an estimated 300,000 in the UK. These chronic diseases can run in families and they affect males and females equally. While IBD can affect anyone, Caucasians are more likely than other ethnic groups to have IBD. Yet it is largely a hidden disease, and one that causes stigma, fear and isolation – it’s thought that many people with the condition go undiagnosed and suffer in silence. It doesn’t have to be like this.…

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November 2018

Well well well.   Stoma wise; it has been abit more consistent this month. I got my defective products replaced and decided that ordering for Christmas was probably going to be a super productive idea. In theory it was, but it happened to come in three parcels and they were not light at all. And I’ve yet to unpack them all and add them into the supplies but ah well. On top of that, I’ve found myself being abit lazy with my stoma to be honest; leaving my bag a little longer to change, being abit wild and loose with…

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