…and moving forward, slowly.
I last wrote on the afternoon of my bowel prep, on Thursday.
I got through the first hour of Moviprep without too much of a problem, it didn’t taste as bad as I thought it might do – my experiences of Klean Prep for my MRI didn’t really set me yup well for this – but after a hour, I was done with my first litre. I got some juice and got settled down for the runs to the bathroom. After about a half hour, I finally went – some 90 minutes after starting prep, but of course this depends on the person and how fast your digestion works – and it was extremely watery. Mission accomplished. The next litre of prep – 4 hours after starting – was difficult. It was hard to get it all down without feeling nauseous. Until my prep ended at about 9.30pm, I was continuing to go to the bathroom. I slept through the night and got up early for my scope to be quite sick. That was a lovely surprise!
I was ready to go and get everything sorted out, albeit abit nervous. My previous experience of pain and the expectation of the actually prodesure – knowing it would be longer and it might result in a longer recovery – I wanted to just get it over and done with. I was feeling sick with nerves and as I sat waiting for the nurse to call me into the Scoping Suite at Good Hope Hospital. I could feel my bowels waking up once more and I knew I would have little time before something happened, but given the evening before, I knew there was nothing inside of me. The nerves were getting the best of me.
I came through, got my observations done, and sent off to get changed. Then I was off to the actually procedure room and got settle down to have my blood taken and my cannula placed. It was painful. I was clearly dehydrated from all the prep and actually drawing my blood was so long and painful. We awaited the doctor and finally, I got my painkillers loaded into the back of my hand and then my sedative. It changed my mind about the procedure. I felt so much better and I hardly remember feeling the scope, the camera going round the bends of my colon or the removal of polyps. I even felt well enough to watch the entire thing on the screen.
Obviously, having not watched it before, it was slightly surreal, but I remember vividly the pictures from both of my flexi sigmoidoscopies -the raised red inflamed lining of my colon and the tightness of the actually colon itself – but this was a completely different story; clear and clean and healthy. There was no new disease and no activity of the already discovered colon.
I got taken to recovery a little over half hour after the scope started and I got my obs taken again, and settled down to just relax. The magic of the sedative gave me a lovely chance to nap but I was soon given food – tea and toast, of course – and given my results.
The no active disease meant that there was going to be no change on my medication – at least for the mean time – but I would have to change my diet. It was clear to the doctor on the scope that I was getting IBS symptoms with my IBD and it was now fundamental that I take out groups of food in my diet in order to track their progress or failure in my daily lifestyle. These would include:
1. Coffee and fizzy drinks.
2. Red meat and Pork.
I would eliminate one of these every month for 5 months and see the effect its has on my Crohn’s through a food diary. I did this back in the New Year when I first got out of the hospital and onto Humira before returning to work, but sadly I didn’t continue it as well as I should have done. Now, it is important, so I must see it through. I am expected to see the dietitian in the New Year alongside my GI to discuss what happens next.
For me, I would really like to go off Humira. Sadly, I am still experiencing some quite significant abdominal pain and the bowels haven’t been all the settled of late. I know that for this weekend, I could contribute these to my recovery – not bouncing back as quick as I’d like to – but really its been continuing before I started the prep and its still present today. Its difficult to get going in the morning, alot like it was before, and the Humira only takes the edge of it for a couple days. I am hoping that the dialogue for medication change can happen when I return to the hospital in a four weeks time. Until then, I’m armed with painkillers and Imodium’s. Maybe that will be enough until then…