Day Four – Sharing Resources


Create a “care page” – a list of your best resources that someone who is newly diagnosed could go to when starting to advocate for themselves or a loved one. Remember to include sites that lead to successful self advocacy!

Anyone who can say that this is an easy post is clearly silly. Finding resources online when you first get diagnoised or find out the complexities of your conditon is easy. Finding good, honest and open sites that show both good and bad sides of your condition, ones that create postivity in the depth of the worst health moments, is difficult. This list could go on for days and days with all the onlines recourses for IBD, but here I’ve also includes some other “spoonies” that are great commuicators and wrtiters for their health. Their tales, told with humour and love, keep me going. They are worth a read.

Inflamed and Untamed –

Blood, Poop & Tears –

National Assoasiation for Crohns And Colitis UK –

forcrohns –

Living with Bob –

The Hurt Blogger  –

My Baglady Life –

Crohnological Order –

The Great Bowel Movement –

I Have UC –

Girls with Guts –

The Crohn’s and Colitis Foundation of America –

Intense Intestines –

Chronology –

Karen Langston – Mind, Body, Soul –

Crohns Disease Warrior Patrol –

You may also like

Leave a Reply

Your email address will not be published. Required fields are marked *