For many Cronhies, having a colonoscopy is the big prodesure. It is used to diagnosis, explore and treat Crohn’s Disease. Friday is my first colonoscopy.
How? You might ask. How did you get this far without a colonoscopy? Well, my Crohn’s was discovered by a Flexi Sigmodoscopy. I underwent two of them whilst being in a massive flare up and when my medications were failing. I remember the pain of someone exploring my colon with mostly shudder and dismay. I’ve avoided a full exploration of my large bowel for just under a year. As Humira started to work and I became healthier and I recovered, the need for more explorations diminished. I just have to have bi monthly blood tests to check my liver function and my CRP level. I was well and happy and comfortable for the first long period of my Crohnie journey.
Now, the time has come for my Humira annual review. Colonoscopy is mandatory for the review. So, its now time to get this over and done with; armed with a box of MoviPrep and three consecutive days off work, my next stage in my Crohn’s treatment begins.
I am hoping that this scope is clear and showed my GI just how little active disease I have. The NICE guidelines state that Humira must be only used in maintenance of moderate to serve Crohn’s for one year; in which if no active disease is present after 12 months of therapy it can be discontinued.
The effects the Humira gave me were great to start with; increased appetite, lower amounts of pain, less abdominal cramps, less frequents BMs and just a general increase in energy. For the most part of my 12 months on Humira, I’ve felt wonderful. But the last couple months have been draining. I’ve had a few rough days, here and there, where my Crohn’s symptoms have been so painful I’ve gone back to painkillers and packets upon packets of Imodiums. I’ve also experienced quite alot of side effects; painful joints, back pain, ALOT of weight gain, general ongoing and continuous pain of my entire body. I feel good for three days after my injection and then I’m back to feeling awful. But I’ve been plodding through. I’ve continued to work, to socialise, volunteer and write and WORK. My goodness, I’ve worked. I must be insane.
I know I should take care of my body, that my health is more important than any job or person or event.. but I’ve wanted to be healthy and normal for so much of the time whilst I was sick; I’m hanging on for dear life.