It seems my body has not taken to a holiday very well.
Last time I blogged I was due to leave the Midlands for the south coast. I spent four days in Cornwall and came home for a couple days before returning to work. Every since I got back, I’ve had a list of problems going on. And for once, none were my usual Crohns problems! Alas, they were all derivatives of my Crohns and despite being new, they have not been fun at all.
I joke alot that every day there is something wrong me with. Its not that far from the truth, nor is it an exaggeration. I’ve had maybe 2 good days of sleep since we returned, almost 2 and half weeks ago. I’ve had agonising hip trouble, so much pain that I’ve come close to being unable to walk. I was told by a triage nurse at our community hospital that I needed to rest and take time off work to recover. I almost laughed, take time off work? NOW? REALLY? Work is a giant pain in the ass sometimes, taking some sick days (of which I wouldn’t be paid for, even more trouble and problems, UGH) is something I couldn’t do with all the staff shortages and holidays that needed covering. Its been a full time job sort of month so far, and its tiring. So, I was stuck with my pain and my shifts. So I asked my GP for some Tramadol. Yes, fine, take it before bed or when the paracetamol isn’t helping. After a couple days my hip pain was gone and I had a good night’s sleep. That has all stopped again, no more sleep for me.
I’ve also found out I’ve got a Vitamin D deficiency. My Rheumotologist tested me a month ago and finally wrote and told me I needed a script for some tablets. Not just for the short term, but for the foreseeable future. To add to that, my GP prescribed more Adcal (Calcium) that I will always need to take. Oh good. Just when I’ve gotten into a good ish routine of taking my Salofalk and my Omoperzole, they add something else into the mix. I am well and truly rattling as I walk around these days.
The heat wave we’re having in England is also bringing my migraine out once more. I am tired of being unable to sleep – half because of my stupid crappy auto-immune disease ridden body and half because of the insane night time temperatures – and I’m tired of being unable to catch a break. I am going to keep going on with all these medications because without them I am a mess. My Salofalk is slowly calming everything down but it does have its time when it does nothing to my guts and my butt is so very sore and painful.
My main concern now is that with taking all these tablets, I am in also in desperate need of loosing weight. I have had abnormal LFTS (liver function tests) for some time now (my IBD nurse said it was close to six months, wonderful!) and found out I have a fatty liver. This can be caused by many things: weight gain, vit d deficiency, diet, medications.. all of which I have to varying degrees. It is a worry to me, because it can put more and more pressure on my heart and lungs and raise my risk for developing diabetes. All things I don’t need on top of my Crohns, that is PLENTLY, thank you body.
So I am abit frustrated.
As soon as I become comfortable with things and have accepted them as they are – not an easy feat, I can tell you – does it all change. And I’ve gotten a longer and longer teeter for how much I can take but really, when will it all settle down? I am not so naive to know it will ever stop, but I’d like a break.
Ironic that my break from my stressful life has resulting in everything else happening. Its just laughable.