Meal Planning – March 13th

I have been severally lacking in my meal planning for weeks now. I’ve no real excuse, I’ve just neglected it and messed about with my routine. Which is a shame, because it feels as if it was starting to stick abit more. Lately, there has been a lot of “winging” and just seeing what was available to eat, not much planning, or just a couple of days of planning, not enough for a post. But no more! I am back to it and I hope it results in better choices – I’ve noticed tighter clothes and whilst this has been good, its now getting abit too much for comfort.

Here is this weeks plan; again just the dinner time meals:

Monday: Chilli cheese fries

Tuesday Salmon with roasted veggies & rice

WednesdayPoached eggs on toast didn’t eat 🙁

Thursday: Broccoli and Cheese soup eggs on toast

FridayChicken Thighs with veggies Pork & pak choi fried rice

Saturday:  Fried Chicken and Mac Cheese

I have a lot of plans this week and I am very busy trying to get things done, to keep myself occupied. So I’ve done some meal prep of roasting lots of veggies, getting some meats sorted, batch making and ensuring there is plenty of fruit on hand instead of snacks.

So, that is the basic plan for this week! Hope I stick to it!

Disclaimer: This isn’t a diet, it is self management of my current ability to eat with a stoma.  If you seek dietary advice regarding your stoma, please contact your stoma nurse or medical team for further assistance.

Life Lately | Stoma and Ostomy Lifestyle

So, I’ve been doing a lot of specific blog posts on ostomy advice and milestones. What I haven’t been really talking about is what is going on with me, personally. After my first surgery, we had a game plan on what I was going to achieve and when. This included how well I was going to recover, how I would get on with my chronic illness wway from surgery and when I would return to work. Returning to work was going to mean retraining and I wanted time to mentally prepare myself for that. But nothing went to plan. Nothing. […]

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What I’ve Learnt after Six Months with an Ileostomy

  “I’ve learnt that this learning experience isn’t over and won’t ever really be over. And that is okay. I am fine with these challenges because I know I can do them, whatever my stoma throws my way.” Extract from my November post “What I’ve Learnt After Three Months with an Ileostomy” ***   Six months. Half a year. It feels and sounds like a huge amount of time. And to really sit and think about what I was doing six months ago – lying in a hospital bed, attached to so many tubes, waking up from surgery to create […]

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My Ostomy Appliance Change Routine

I’ve had my ostomy for six months now. And throughout that time, I’ve been getting used to and getting more comfortable with changing my appliance. From the first couple of days that my ostomy existed, I was on TPN and hooked up to my feed for the majority of the time. I would have my stoma nurse come and change my bag every two days. But as I got moved off the TPN and onto solid food, she expected me to change my bag myself. I would do this, of course, it was part of the process of accepting my […]

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Meal Planning – February 13th

This week I have a couple of plans – I have an important hospital appointment, a coffee date and a review due. Plus Ben is away in Leicester; he’s coming into the final stretch of his training and I know he needs to concentrate. So I’m spending this time this week getting myself organised. At the weekend I cooked a pork shoulder in the slow cooker; making the most glorious Pulled Pork. It was so huge, I have got plenty left over for meals this week. It was the first time I’ve a) used a slow cooker and b) made […]

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Sometimes; it just hits you, hard

How long does it take you to accept something?  I’d be lying if I said I hadn’t be terrified to see my stoma. The first time I got to see it, I was high on morphine and was desperately trying to understand what was coming out of me and what I was attached to. PICC line? Check. PCA pump? Check. Catheter? Check. Abdominal drain? Check. Ostomy bag…? Check. I felt the outline of a bag underneath my gown, curious to see it but equally scared and nervous. How much of that was down to the drugs? How much of that feeling […]

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My Tips for Eating with an Ostomy

I’m coming up to six months with my wonderful ileostomy, Pricilla. It’s not always been a great relationship but I saw quite quickly how she was going to make my life with my chronic illness so much better, I’ve accepted her being here and being here permanently. What has always been important to me is food. Always. Ever since I was small, I loved food. I baked with my mom as a child, leant to cook as a teenager and enjoying it more and more as I grew up and lived away at university. When I was diagnosed with Crohn’s […]

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Meal Planning – February 6th

This week is another week of no appointments or plans; only some smaller writing deadlines. So eating wise I have more time to try new things, its not just me this week either; Ben is working in his patch all this week.  I have some free time so baking is on the cards. After everything that happened last week and went wrong, I was feeling abit disheartened by my meal planning exploits. But I know I can’t give up that easily, so I’m going to persurvere. We had plans this weekend so food shopping got done on Saturday morning before going out. Came in […]

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Meal Planning – January 30th

This week I am writing and writing a lot. I managed last week to make connections and get myself some blogging spots so I’m going to smash them out of the grey brain matter this week, hopefully. So eating wise I know I will be busy so I was looking for cheap, easy meals for one; Ben is away training all this week. I think I’ve hit it on the mark, planning wise. I even went and did my food shop on Friday evening after dinner – whilst I wasn’t too fatigued by everything else. Came in under budget – […]

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One Year On

Three hundred and sixth five days. A whole year; twelve months. We sat in traffic. It was a busy Wednesday morning rush hour. I’m anxious, excited and ever so scared. It felt like make or break time; would these doctors also recommend surgery? Did I have more choices than the scalpel? I was in agony. I knew I was sick and I knew that I would probably choose surgery but who wants to make that decision? Without more opinions and more information? No, today was necessary. I was curious about the new and different hospital; explaining my history to a […]

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Meal Planning – January 23rd

I’ve been meaning to start and hopefully continue meal planning since I got my ostomy; for several reasons: To help me plan meals and budget. Find new cheap meals to make for me and Ben – we’ve now got more financial constraints. Improve my organisation of and my passion for food and cookery. Better track what my stoma is enjoying / disliking / gives me issues. So, I am hopeful that by sharing this; others can see what exactly I eat – no pressure to maintain my ethos of ‘healthy eating with a stoma’ – and that by having a stoma […]

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Forgetting about ‘The IBD’ and *all* that Anger

So it was Tuesday night and the boyfriend and I were discussing the previous day’s appointment with my surgeon. As much as I respect the logic and reasoning behind my surgeon’s need to keep me under his care and continue to test me – to make sure the Crohn’s is under control or if not, seeking the correct treatment option for me – but it has disappointed me. I honestly thought I was doing well, doing okay with mananging my stoma on my own, gaining weight, making more of my time at home and getting some light exercise. Since then, […]

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Surgical Review – 12.12.16

This is my surgical review for both my surgeries I had done this year. I had my Right Hemicolectomy in May and my Subtotal Colectomy in August. The second surgery superseded the first by giving me my ileostomy. I was sort of expecting to be on the way to being discharged at this appointment but I knew deep down that this probably wasn’t possible. It’s only been three months post-op and it seems whenever my surgery is discussed with me at the hospital, they added on additional weeks to my recovery because of already having Crohn’s disease. Apparently, this type […]

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REVIEW: Coloplast NEW Brava Protective Seal

At the end of November, I was invited to Coloplast HQ in Peterborough to find out more about their new Brava Protective Seal and of course sample the product too! Why the new product? Coloplast wanted to improve on their exisiting Brava Moudlable Ring and provide a more comprehensive variety, to fit better with more sizes of stomas. Feedback from their customers lead them to look for three improvements: 1. More output resistance 2. More absorbancy 3. Accommodate for their shapes and sizes of stoma. What are the difference between the two? Coloplast’s Brava Mouldable Ring comes in two thicknesses – […]

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Travelling Solo with an Ostomy

So last week I travelled alone. Not unheard of right? Some thing people do all the time; without hesitation, without thought, just ordinary and normal. Not for me. I’d always loved travelling – I spent a year living and studying on Vancouver Island, Canada as part of my degree, I travelled to and from university a lot and I generally got out and about when I could. But when the IBD struck me in late 2011, it did throw a spanner in the works; I suddenly saw all the things I could no longer do because I had to be ‘careful’ and […]

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What I’ve Learnt after Three Months with an Ileostomy

  Yes, it’s already been THREE MONTHS! Can you even believe it?! I know that three months is nothing in the scheme of things, and even three months out of 2016 doesn’t feel like an incredibly long time, but to me three months is a lifetime. When things don’t go right or you have problem after problem, even a week can feel like an eternity. That’s what I was experiencing before I had my hospital admission in August. I was trying my best to deal with what was happening to me at the time – codeine addiction and subsequent withdrawal […]

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Oh The Pain! Flapjackgate: My First Ostomy Blockage

What was suppose to be a relaxing weekend in preparation for holiday to Cornwall with Ben this week, turned out to be somewhat of a small disaster: Going to Good Hope A&E twice in the space of 12 hours. Oh joys. Saturday started off fairly normal – breakfast, shopping in Lichfield, food shopping in Tamworth, followed by lunch at home. I had made chocolate flapjacks the afternoon before and had one after my lunch. Delicious, I thought. I’ve never been a big fan of them but at least I can eat them without pain now, right? Oh how wrong  I […]

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Vedolizumab: The Final Loading Dose 07.11.16

Four weeks have passed. My blood work was done the day of stoma clinic last week so I was on schedule to receive my final loading dose of Vedolizumab then on to a regular schedule of having it. As I said in my last post about Vedo, we still didn’t know if this was working yet or if it was going to work. We just had to complete the loading doses – week 0, week 2 and week 6 – before moving onto the usual eight weekly infusion schedule. I haven’t thought or planned past receiving that fourth dose in […]

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Returning to Work…?

Today I attended a work coach appointment at our local Job Centre. NB: I currently receive ESA because I’m unemployed and recovering from surgery.  I’m still yet to my surgeon for my post op check, but so far things have been going well with my stoma and my Crohn’s; I haven’t been left without any help or care! So today was about seeing what will happen next. Usually, a person on ESA gets assessed but due to the situation at the DWP and my own circumstances due to surgeries, this has been halted for the foreseeable future. But it does […]

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Grieving: Those Waves Don’t Stop

They “prep” you for surgery; you hear that a lot in the weeks and days leading up to an operation. Medically, you should be fit enough to withstand the trauma your body is going to under take. You should be aware of the potential dangers, prepare yourself for things to be different than what you’re expecting, what you’re thinking could happen; even if you’ve had surgery or this surgery before. What about mental preparation? Do the doctors ever prepare you for surgery? Apart from what I’ve mentioned above, how does anyone prepare for surgery? I was a novice to it all in May, there […]

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