Living with an Ostomy

all posts relating to living with a ostomy, day to day. Including leaks, ostomy supplies, bag changes, being out in public, managing output.

Happy Stomaversary!

What I’ve Achieved in Twelve Months with my Ostomy   Well, me and Priscilla have been belly buddies for a whole year today. It feels like such a long time but it also feels like nothing, like I’ve clicked my fingers and here we are. But what have I done in these twelve months since that fateful day of ostomy…

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The What and Why: Vitamin B12

Teeny tiny vials of energy It was when I was in the throes of being assessed for surgery, we discovered that removal of my terminal ileum – my first surgery; right hemicolectomy – would mean I would need Vitamin B12 injection following my recovery. What is Vitamin B12? It is an important vitamin needed in the body to help keep…

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When Does Having an Ostomy Feel “Normal”?

I am a firm believer in self confidence. Feeling sure of yourself and who you are is a big part of feeling good about life. But do you know what makes self confidence difficult? An incurable chronic illness. And all the things that come with it. What I struggled with was, after almost five years of living with Crohn’s Disease,…

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The Reminder that I’m Not Normal

I sit in the bathroom, looking straight ahead to my ostomy bags and accessories. I smell the clinical, medical appliance nature of them, but they don’t look medical. I know the feel of my bag, the crinkle of the fabric again my waistband. The grey colour that disappears under my clothes, concealing my medical condition.  An ileostomy. My stoma. Pricilla,…

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Your Period with an Ostomy

It’s something that happens all of us ladies, but is it something you consider discussing when you get diagnosed with a chronic illness? It certainly wasn’t high on my priority list with my specialist and IBD nurse at the beginning of my #adventureswithachronicillness A little medical history on me: I was diagnosed with PCOS – polycystic ovary syndrome – when…

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Waking Up with a Stoma

I had been through recovery before, knew that the groggy fog of the anaesthetic would eventually lift. But this time around I felt utter relief. I was confident this time that this was going to be a new life for me. I felt around under my hospital gown for the scar, for the bag. The scar felt huge and like…

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Grateful for my Struggle

“In order for me to get here, I had to go there.”   I’ve never really sat down and thought about what having a chronic illness actually means. It means a great deal of things to different people, so there is no one true answer to what having  IBD actually is like. The wide spectrum of symptoms, side effects and…

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Advice: How to Solve Peristomal Skin Issues

If you’re a Stoma Owner, you’ve probably – at some point in time – had some sort of skin issue since your ostomy surgery. Below are potential issues, from most to least common. Identifying what has caused the problem is the best way to find a solution. 1. Change of stoma size This is important to note in the weeks…

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