Living with an Ostomy

all posts relating to living with a ostomy, day to day. Including leaks, ostomy supplies, bag changes, being out in public, managing output.

Updated: My Ostomy Appliance Change Routine

It’s been a whole year since I shared my stoma bag change routine. I wish I felt more comfortable to actually show it in a video, but alas, I’m not quite there yet. You’d see it only take a maximum of five minutes on a good day – when the stoma is inactive and I don’t have a peristome rash. So what has happened in the last twelve months? A few things actually; I moved for my current job, so I had to organise myself into a new stoma changing routine. I gained bit of weight, lost some and then…

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My Love for You, Dear Stoma…

Today we celebrate love. A single day devoting to telling whomever we love, that we love them. We shower them with gifts, affection and kind words. I am doing that today too. But for my stoma. Yes, you read that correctly; my stoma. My stoma used to be that elephant in the room, the alien living under my top, a living and breathing weird little thing.  These days, whilst she is still living under my clothes, covered by my ostomy bag; she is a living and breathing embodiment of my disease. I have Crohn’s disease and she saved me. She gave…

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Open Letter: Stoma Bag Change

Despite doing my own research prior to my ostomy surgery, nothing really can prepare you for changing your bag for the first time. Let alone the hundredth or whatever. I sat removing my leaky bag earlier on, remembering my first bag change when I felt in control. It must have been a couple months post op when I wasn’t afraid of looking at it or feeling it. I’d gotten use to that idea quite quickly. But the soreness and uncomfortableness; that took a couple months to settle, as my stoma dropped in size, my abdomen changed shape and I started…

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The “What is a Stoma?” Series – Part IV

Welcome to Part IV in my new blog series on “What is a Stoma?”  This instalment covers the ostomy appliances, their accessories, how to obtain your prescription and your options for getting hold of your supplies. There are some differences in appliances depending on your type of stoma and some instances when it might be different, but otherwise this advice and information is for all types of stomas.  This is information for those living in the UK. Some differences may occur in Northern Ireland and depending on your location in the UK with prescription services, and some items aren’t yet…

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The “What is a Stoma?” Series – Part III

Welcome to Part III in my new blog series on “What is a Stoma?”  This instalment covers the question of what exactly having a stoma feels like, possible diet & lifestyle changes, potential complications and considerations of living with a stoma and where to get access to support & advice for coping with having a stoma. The information below I have complied from various sources including current ostomates of all types. I hope that this show the wide variation in how each type of stoma is dealt with; not only medically but on a personal & emotional level too.  This…

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