Challenges with an Ostomy

all posts relating to the challenges of living with and learning to love an ostomy. Emotional and mental challenges; new activities, changing old habits, swimming, disabled toilets, stigma.

Speaking: Loud and Proud

Know what inspires me the most? Other patients. Other ostomy patients, other IBD patients. Those people who have a connection to me once I share my own journey. I met these people last week at a Coloplast Care day. I spoke about how I came ot have my ostomy, my IBD history in brief and how life has been since surgery. I tried to follow my written document – you can read it here – but I ended up going with a flow of just my own words, right from the heart. Speaking in this way did make me unexpectedly…

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Hospital: Fear & Anxiety or Hope & Comfort?

Why do you go to hospital? Is it because you’re in so much pain and need relief and answers? Well you’re like me then, only going when it is beyond your threshold and you need help. The pain was unreal and unbelievable earlier and every time I’ve been come into hospital I’ve always experienced pain; they are forever intrinsically linked in my head. So now, it’s incredibly hard to think I can still be here without feeling any pain. I feel quite fraudulent. Added to that, I am in the same room from my last admission; my ostomy surgery, all that pain, blood, fear, shock, disbelieve. I am…

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Changing Attitudes

13.06.16 I stared down at the box of tablets in some sort of disbelief. How did it get to this, needing to take anti depressants? It’s week five of my post op recovery. I had surgery in mid- May on my bowel and to remove a cyst on my ovary. Things were going well; I was healing from my incisions and I was getting back to a normal diet. Then two weeks ago, things took a horrible turn. I was sick. On and off for 36 hours. I honestly haven’t felt well since. No one can tell me if this…

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What I’ve Learnt after Six Months with an Ileostomy

    “I’ve learnt that this learning experience isn’t over and won’t ever really be over. And that is okay. I am fine with these challenges because I know I can do them, whatever my stoma throws my way.” Extract from my November post “What I’ve Learnt After Three Months with an Ileostomy” ***   Six months. Half a year. It feels and sounds like a huge amount of time. And to really sit and think about what I was doing six months ago – lying in a hospital bed, attached to so many tubes, waking up from surgery to…

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Travelling Solo with an Ostomy

So last week I travelled alone. Not unheard of right? Some thing people do all the time; without hesitation, without thought, just ordinary and normal. Not for me. I’d always loved travelling – I spent a year living and studying on Vancouver Island, Canada as part of my degree, I travelled to and from university a lot and I generally got out and about when I could. But when the IBD struck me in late 2011, it did throw a spanner in the works; I suddenly saw all the things I could no longer do because I had to be ‘careful’ and…

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