Challenges with an Ostomy

all posts relating to the challenges of living with and learning to love an ostomy. Emotional and mental challenges; new activities, changing old habits, swimming, disabled toilets, stigma.

The Importance of a AUR – Appliance User Review

** Warning: this post contains details about my stoma, it’s appearance and output. If you would not like to read, please stop now ** That ‘aha!’ moment Lately, I’ve been experiencing some quite bad leaks with my stoma bag. What started off as just because I’d change my bag after two days of wear, it soon became daily and then multiple times a day. Sometimes, it would happen before I’d even had a chance to do the first empty of a new bag! After almost a year without massive leaks and only a few patches of soreness I solved myself,…

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Surviving the Winter with an Ostomy: A Guide

Winter time can be a daunting and challenging time when you have an ostomy. Worries can focus around how routines change with the season, what you’ll be able to eat and drink during the festive period, whether you will be prepared for the ramping up of social activities and ensuring you have supplies to see you through and how to cope during a period of time when there can be limited access to medical professionals.  In this guide, I’ll be looking at sharing my own advice and some common tips and tricks to help make the Winter period enjoyable  and relaxing. …

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Taking Steriods for an IBD flare up whilst living with …

Disclaimer: this is an expanded version of a previous post – IBD Basics: Corticosteriods which will now cover how to take steroids, how they work within the digestive tract and how this affected when having a stoma.    How do corticosteroids work? Corticosteroids are potent anti-inflammatory agents for moderate to severe relapses of both UC and CD. They have no role in maintenance therapy for either disease. They mimic the effects of hormones your body produces naturally in your adrenal glands, which sit on top of your kidneys. When prescribed in doses that exceed your body’s usual levels, corticosteroids suppress inflammation. This…

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Ostomy Blockages: How to Cope

It is early December and I am sat here dealing with a problem. A problem which I’ve suffered with in the past and one I will probably suffer with in the future; an partial ostomy blockage. You see, right now, my mind is cast back to those pre surgery talks I had with my IBD team. I wasn’t naive; I knew surgery would be life changing, not only in the foreseeable future, but forever. I would have to adapt to these new set of circumstances. They told me that ostomy surgery recovery would take six to twelve months physically, but…

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Life Lately | Struggling in The Heat

Guys, Summer is not my friend Now don’t get me wrong, I enjoy summer but I like to be inside enjoying it. I hate being too hot and just prefer to be cool instead of roasting myself in the sun like a chestnut. I’ve felt this way for all of my teenager years, into adulthood and it’s been a struggle to have a good summer. Working also added some drama to this too, unbearable traveling to and from work, both on public transport and driving, I just always long for the Autumn around about July. What had made my dislike…

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