Medication

Posts relating to medication – except biological drugs

Having to face people day to day who have no idea that you are suffering the side-effects of medications because you are sick.. It is Day 9 of Humira. I can actually feel the strength falling out of my body, through my fingers and feet. Every step I am taking is one less step of strong I have left inside of me. I wish I could sleep better. The insomnia is at its worse when I am coming to the end of my cycle. I sit in bed at night, praying for some shut eye. Praying for more than 2 hours…

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It’s *that* time again!

Tomorrow is my Humira injection. All of this week has been building towards this date. Yet again. The further I get ‘into’ this ‘disease’, the more time I spend on this medication, the better I become at listening to my body; the more I know how much things follow a pattern. Today was particularly hard. It is Day 13 of the cycle, possibly the worst day of all my ‘bad days’ on adalimumab. I can usually go without any pain for 9 days on my injections. As soon as we hit the fatal ‘second Saturday’ I feel the energy begin to fade…

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Twelve Days

So, twelve days ago – January 19th to be precise – I gave myself my second home injection of Humira. The first one since finding out I was in a sort of ‘remission’. I air quote this because the term and understanding of ‘remission’ is subjective and very unclear. It’s variety makes it difficult to form consensus, but I digress. Every day since then I have woken without any pain, without a fever, without much tiredness and without the fear of a set back. Today, no such luck. Belly pain. Frequent visits to the bathroom. Unable to find anything appealing…

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“SHUT UP WILL YOU?!”

This is what I ended up screaming at my tum last night in front of the tv, with the whole of my family watching me. It was the culmination of a whole day of shitty Crohn’s symptoms. In fact, after this sentence came out of my mouth, I began wondering how bad things were going to get. I had awoke yesterday morning later than usual – normally, despite not working yet, I am like clockwork at waking up, regardless of the day – with really bad abdominal pain. Visit the bathroom. Slight improvement. Fix breakfast, take last of my Prednisolone tablets…

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Today has been a rough day. Nothing major has happened, just lots of small things that have accumulated into something.. bigger. Had trouble taking my medication today – only my iron tablet – couldn’t swallow it and almost choked. Am home alone now until I go back to work and it was scary. My glasses are irritating my nose still, so back to my old pair. Found lots of hair in my brush today, and as pathetic as it sounds this part of my day made feel the worse, had a little weep. The physical parts of my disease have…

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