“So I am scared of all of this. That I’m trying so hard to get some control of everything, I’m trying to not be angry but being angry is all I can feel. “
“I know, I am being hard on myself. And it isn’t too much of a big deal, but to me, it is. I should be a better patient. I’m good everywhere else, why is this so ‘difficult’ to do, manage, maintain?”
“she – and many others – don’t understand how much of an emotional battle IBD can be. It can be hard to switch your mind off from what is going on, or what could happen… mentally preparing myself, is part and parcel of my disease.”
“Considering how unwell I had been feeling, and in hindsight, how unwell I would continue to feel once starting it, I didn’t get told (or I didn’t ask, either one) what to really expect”
I had put off contacting my IBD nurse for weeks and weeks. Things were steadily going down hill, pretty much…
“I just know that who I am now, isn’t who I want to be. This is not the quality of life I am willing to settle for. So maybe I need to make a strong and powerful decision that will benefit me in the long run.”
he described my antibodies as thus; “there is a limit of 200 on the scale, you are *way* above it”. Simply put, my body is fighting the drug, as soon as it comes into my system.