Biological Treatment

All things related to Biological drugs – Humira, Infliximab and Vedolizumab

Half way through or half way there?

So, this week I’m half way through my four weeks of this second infusion. This also means, I’m more than half way to my next infusion too. In fact, its 9 days away and honestly. I’m excited. The difference between now and before Inflixmab is huge. And add to this how different I feel between first and second infusion, and…

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Infliximab #2

Two weeks came around fast. I could hardly believe it was my bloods check up last Friday, let alone how quickly the weekend came and gone, then it was Tuesday. Time for an all day stint at the hospital, sitting around waiting for time to pass. This time, everything was delayed. I was on a later appointment schedule, so that…

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Infliximab #1

Yesterday was very interesting. I am very used to being at the hospital, the regularity of my clinic appts and my ‘need’ for blood tests within the NHS trust system, I’m there at least once a week some weeks. That being said, it was extremely nerve-wracking waiting to be called into the infusion room. With my regular IBD nurse off…

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A bag of nerves

So, tomorrow is my first Inflixmab infusion. This is my second and final attempt at a biological treatment for my Crohn’s Disease. Last December the decision was made, after much discussion and scoping, that I was to stop Humira. I was feeling a mixture of relief and freedom. No more fortnightly injections, no more struggling to get through a 14…

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Infliximab

Yesterday I got the call that will hopefully start to change my Crohnie life again. My IBD nurse confirmed that the GI GMT have successfully approved me for Infliximab.  I go back to the hospital next Tuesday for a “routine” clinic appointment to fix my first infusion date, after my bloods, TB test and chest X-ray. I had had an…

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Welcome Home

With another hiatus come and gone, its time to start writing again. Since my last post, I’ve spent two separate nights in A&E with Crohn’s related pains. Since then, I’ve been without any real help, it has been weeks and weeks of pain and frustration. That was up until the start of September when I was working too much, too…

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Humira Review

Tuesday was my medication review with my GI at Good Hope. I’ve been asking about my review for a good 3 months to date, and finally, I’ve been given an answer. After all the hoop jumping, all the tests and bloods and scans, finally, FINALLY, I’m off the Humira. I had a speech all planned and all the evidence I’ve…

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Unhappy isn’t even half of it.. I’m full …

Yesterday, my Humira injection was due. Yesterday, I visited my GP to discuss my ongoing symptoms. Yesterday, I was told I was had gained so much weight that I was unable to take contraceptive pills. Yesterday, I cried and inwardly cursed the drug that had brought me back from the brink. Yesterday was tough. I finished work in the middle…

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