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Young Crohns

Young Crohns

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Biological Treatment

Vedolizumab – Two Years On

18-09-2019 in Biological Treatment, Medication, Vedolizumab
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Biological Treatment, Gratitude and Being Comfortable in Hospital

26-09-2018 in Biological Treatment, Hospital
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#IBD Hour – Biological Treatments

15-02-2018 in Biological Treatment, Crohns, IBD Explained
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Vedolizumab: A Rocky New Start

26-10-2017 in Biological Treatment, Medication, Vedolizumab
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Vedolizumab: Here We Go Again – Third Times a Charm

22-09-2017 in Biological Treatment, Medication, Vedolizumab
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The Return of… Everything

19-09-2017 in Admissions, Biological Treatment, Hospital, Medication, Vedolizumab
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Vedolizumab: The Final Loading Dose 07.11.16

10-11-2016 in Biological Treatment, Medication, Vedolizumab
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Vedolizumab: The Restart

13-10-2016 in Biological Treatment, Medication, Vedolizumab
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Vedo #5 – The Finale

01-02-2016 in Biological Treatment, Medication, Medication Issues, Vedolizumab
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I am scared.

13-12-2015 in Biological Treatment, Medication, Vedolizumab
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Vedolizumab #1 & #2 – Do I dare hope..?

02-11-2015 in Biological Treatment, Medication, Medication Issues, Vedolizumab
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The road to Vedolizumab

18-10-2015 in Biological Treatment, Medication, Medication Issues, Vedolizumab
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Infliximab #14 – The Final One

09-09-2015 in Biological Treatment, Infliximab, Medication
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Infliximab #13 – Not so unlucky for me!

21-07-2015 in Biological Treatment, Infliximab, Medication
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Infliximab #12 – The Worries of a Troublesome Colon Pt.1

02-07-2015 in Biological Treatment, Infliximab, Medication, Medication Issues
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Infliximab #11 – Ongoing Troubles…

19-05-2015 in Biological Treatment, Infliximab, Medication, Medication Issues, Methotrexate
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March Madness & MXT

19-03-2015 in Biological Treatment, Infliximab, Medication, Medication Issues, Methotrexate
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Infliximab #9 and #10

27-02-2015 in Biological Treatment, Infliximab, Medication, Medication Issues
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Instagram post 2196436952638479164_185308845 Today we should be starting a new chapter in my therapy.
But guess what came to mess me about?

UNBELIEVABLE PAIN. 
Ironic eh? 🤷🏼‍♀️
Credit: @morganharperlnichols⁠
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#adventureswithachronicillness  #wisequotes #wisequotesforlife #wisewordstoliveby #wordsofwisdom #wordstoponder #wordstoinspire #ibdawareness #ostomate #stoma #crohnsdisease #crohnswarrior #crohnsfighter
Instagram post 2194468772323240490_185308845 Last month I promised myself to create some #crohnsandcolitisawarenessweek content but truth be told, this past week or so I’ve not had any energy to write about my #crohns or think about it anymore than I had to.

All I’ve been doing is focusing on getting myself in better frame of mind. 
Therapy is wonderful and daunting.
Recovery is tough. It isn’t just suddenly over, it keeps going.
Please remember to always put yourself first, your well being comes before anything else 💓
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#adventureswithachronicillness #ibdawareness #crohndisease #crohns #ibdwarrior #ulcerativecolitis #crohnsandcolitis #invisibleillnessawareness #mentalhealth #mentalhealthawareness #mentalhealthmatters#chronicillness #ibdlife #ibdblogger #inflammatoryboweldisease #ittakesguts #guthealth #letstalkibd
Instagram post 2189423528732941523_185308845 CHANGE, CHANGE, CHANGE
The many faces of my IBD. 
Who’d have thunk that behind these photos there is a chronic illness?

Sometimes it’s hard not to identify and characterised yourself by your illness, especially if the hard times keeping barrelling themselves towards you. But know this, you are more because of what you grow though 💜
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#selfie #behindthecamera #behindthelens #adventureswithachronicillness #ibdawareness  #ostomyawareness #invisibleillnessawareness #chronicillness ##ibdawareness #crohndisease #crohns #ibdwarrior #ulcerativecolitis #crohnsandcolitis #stomaowner #chronicillness #ibdlife #ibdblogger #ittakesguts #guthealth #letstalkibd
Instagram post 2187037633631472225_185308845 Exam time 🤞🏻🤞🏻🤞🏻
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#adventureswithachronicillness  #wisequotes #wisequotesforlife #wisewordstoliveby #wordsofwisdom #wordstoponder #wordstoinspire #ibdawareness #ostomate #stoma #crohnsdisease #crohnswarrior #crohnsfighter
Instagram post 2186290038513252659_185308845 WAY BACK WEDNESDAY⁠
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A holiday with IBD used to strike fear and panic in me. ⁠
A holiday with a stoma was a welcomed change. No worries about being unable to find a toilet, watching what I ate and drank, or worrying about a flare up hitting me. ⁠
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A stoma might not be the perfect solution to IBD but it's allowed me to relax and overcome alot of my anxieties. ⁠
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#selfie #behindthecamera #behindthelens #adventureswithachronicillness #ibdawareness  #ostomyawareness #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ibdlife #stomaowner #waybackwednesday
Instagram post 2185618455582873459_185308845 CAN YOU HAVE A MASSAGE WITH A STOMA? ⁠
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Short answer: HECK YES.⁠
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There is *nothing* I can't do with my stoma. Some of the things I used to do I just have to adapt to - much like life with a stoma in general. ⁠
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Tips for a massage:⁠
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1. Make your therapist aware. Partly for politeness but mostly because they can adapt your massage around your stoma ie lie on your side as they would do for those who are pregnant.
2. Make sure you empty before hand. Always a good thing, you don't want to leak. ⁠
3. In addition to that, I tend to book my appointments for mid morning so that I've been able to have breakfast but there is little to nothing in my bag by then.⁠
4. Take a spare bag with you - depends on the type of massage you have but oils can interfere with the baseplate and adhesive. ⁠
5. Enjoy yourself! Easier said that done but once you do it, you'll wonder why you ever worried. It is something to get used to but it's all about adapting and being prepared. ⁠
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Lying on your front might make you nervous but unless your stoma is active and painful, you hardly notice. ⁠
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 #adventureswithachronicillness  #ostomyawareness #ittakesguts #ostomy #ileostomy #colostomy #nocolonstillrollin  #ostomylife #ostomywarrior #stoma #ostomyblogger #ostomybag #stomawareness #stomastigma #nocolonclub #barbiebuttgang #selfcare #mentalhealth #treatyoself #selfcareclub
Instagram post 2184803089101259219_185308845 NEW BLOG POST⁠ ALERT⁠
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Let's Talk About... Health Tracking⁠
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This week's post looks at how and why health tracking can be a positive aspect of life with chronic illness. With IBD, @myibdcare is a great example of the impact a digital application can have with a long term health condition. ⁠
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For me, being able to monitor and record my symptoms has not only helped me feel more in control but it's also shown me patterns I wasn't aware were happening. And more often than not, I have my phone with me; this app makes it easy and simple to do. ⁠
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To read more, it's linked in my bio. ⠀⁠
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#adventureswithachronicillness #ibdawareness #crohndisease #crohns #ostomyawareness #ibdwarrior #ulcerativecolitis #crohnsandcolitis #invisibleillnessawareness #chronicillness #ibdlife #ibdblogger #inflammatoryboweldisease #ittakesguts #letstalkibd #ostomy #nocolonstillrollin  #ostomylife #ostomywarrior #stoma #ostomyblogger  #stomawareness #stomastigma
Instagram post 2181563281242601184_185308845 Been revising this evening ahead of next week’s first AAT exam AND tomorrow’s mock exam. 
So far, so good. Let’s see 🤓
Credit: @jessrachelsharp
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#adventureswithachronicillness  #wisequotes #wisequotesforlife #wisewordstoliveby #wordsofwisdom #wordstoponder #wordstoinspire #ibdawareness #ostomate #stoma #crohnsdisease #myAAT #studyingwithachronicillness
Instagram post 2180547396503752067_185308845 WHO DOES THIS CAT THINK HE IS? 
@catventuresofnewton
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#catsofinstagram #catstagram #kingnewton #selfie #behindthecamera #behindthelens #adventureswithachronicillness #ibdawareness  #ostomyawareness #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ibdlife
Instagram post 2179759858969958806_185308845 Morning! 📣

Anyone else wake up like this? 🙊
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#adventureswithachronicillness  #ostomyawareness #ittakesguts #ostomy #ileostomy #colostomy #nocolonstillrollin  #ostomylife #ostomywarrior #stoma #ostomyblogger #ostomybag #stomawareness #stomastigma #nocolonclub #barbiebuttgang
Instagram post 2177698475214272269_185308845 NEW BLOG POST⁠
Life Lately | Catching My Breath⁠
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It's been TOO long since there was a full and complete update on my health. ⁠
Today I am feeling more human and less like a cold monster, so here is all that's been happening since September. ⁠
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Talk of: wounds, surgery, mental health, therapy, employment, medication and abscess! ⁠
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To read more, it's linked in my bio. ⠀⁠
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#adventureswithachronicillness #ibdawareness #crohndisease #crohns #ostomyawareness #ibdwarrior #ulcerativecolitis #crohnsandcolitis #invisibleillnessawareness #chronicillness #ibdlife #ibdblogger #inflammatoryboweldisease #ittakesguts #letstalkibd #ostomy #nocolonstillrollin  #ostomylife #ostomywarrior #stoma #ostomyblogger  #stomawareness #stomastigma
Instagram post 2176543197990232775_185308845 #worldkindnessday 💜💜💜
Credit: @morganharpernichols
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#adventureswithachronicillness  #wisequotes #wisequotesforlife #wisewordstoliveby #wordsofwisdom #wordstoponder #wordstoinspire #ibdawareness #ostomate #stoma #crohnsdisease #crohnswarrior #crohnsfighter
Instagram post 2175418421242694999_185308845 TIP TUESDAY - OSTOMY EDITION: Supporting Products⁠
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A look into the different sort of supporting products you can use when you have a stoma.  Supporting products used to be called 'accessories' but that is very ambiguous and doesn't explain why these products can be essential for some and not others.⁠
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This one focuses on POWDER - a intermittent product which can help absorb moisture on broken and sore, moist skin caused by output making contact with the peristomal skin.
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It is a non-medicated powder which absorbs moisture from the skin it touches. It should only be used when you have broken or sore skin, never as just part of your normal routine.⁠⠀
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Application of this can be tricky - as it needs to be placed on the skin where it is needed. Most bottles come with added air so you can pump the powder directly to the affected area. Otherwise, you can use a finger to dap some on to the area. ⁠

A word to the wise; it's best applied when the stoma is inactive so that output doesn't get mixed into the powder! ⁠You can also set the powder in place with barrier spray.

Any other tips when it comes to barrier products? Share in the comments below! 👇🏻
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#healthblogger #blogging #ostomyawareness #ostomyproducts #supportingproducts #stomaowner #powder #stomapowder #ostomysupportingproducts #blogseries⁠
Instagram post 2174928186041915865_185308845 Trying my best, failed.⁠
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I am eight days out from my Vedolizumab infusion and have to get bloods done on Wednesday. HOPING and PRAYING that my WBC aren't off the charts so that my medication goes ahead. ⁠
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#adventureswithachronicillness #ibdawareness #crohndisease #crohns #ibdwarrior #ulcerativecolitis #crohnsandcolitis #invisibleillnessawareness #chronicillness #ibdlife #ibdblogger #inflammatoryboweldisease #ittakesguts #guthealth #letstalkibd
Instagram post 2172519354925613347_185308845 Smiling while in hospital? ⁠
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I think some of joy seen on my face is because I was in a place where I could actually be helped.⁠
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I think I was trying to put on a brave face for myself. ⁠
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I think I was relieved.⁠
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I know now that I was gradually getting sick and tired of being sick. I know now that that period was just another part of the ongoing Summer of Shite it later would be referenced as. I know now that I would smile again through the rougher times to come. ⁠
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For me, a smile deflects alot of my own pain. This one looks - and probably felt - genuine at the time, but my insides were slowing dying. This admission wouldn't give me a clear cut diagnosis, it only added more. ⁠
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But still, I smiled.⁠
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I got through it, and you will too.⁠
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We're full of surprising strength 💙⁠
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#flashbackfriday #adventureswithachronicillness #ibdawareness #crohndisease #crohns #ibdwarrior #ulcerativecolitis #crohnsandcolitis #invisibleillnessawareness #mentalhealth #mentalhealthawareness #mentalhealthmatters#chronicillness #ibdlife #ibdblogger #inflammatoryboweldisease #ittakesguts #guthealth #letstalkibd
Instagram post 2171794536926234905_185308845 •
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#adventureswithachronicillness  #wisequotes #wisequotesforlife #wisewordstoliveby #wordsofwisdom #wordstoponder #wordstoinspire #ibdawareness #ostomate #stoma #crohnsdisease #crohnswarrior #crohnsfighter
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