Hospital

all posts relating to being in hospital – admissions, infusions, appointments

Happy Surgery-iversary…?

May 12th. It is forever etched into my brain. We’d been able to control, for the most part, my disease with medications and ‘diet’ for the five years prior to that. But, somewhat inevitably, it came down to needing a clinical trial or surgery. I opted for surgery but debated the toss for weeks after choosing. I was going to need testing to predict the type of operation I would need and I still went back and forth throughout all that testing. But once we had a plan, I was keen to move forward. The pain, the nausea, the inability…

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Hospital: Fear & Anxiety or Hope & Comfort?

Why do you go to hospital? Is it because you’re in so much pain and need relief and answers? Well you’re like me then, only going when it is beyond your threshold and you need help. The pain was unreal and unbelievable earlier and every time I’ve been come into hospital I’ve always experienced pain; they are forever intrinsically linked in my head. So now, it’s incredibly hard to think I can still be here without feeling any pain. I feel quite fraudulent. Added to that, I am in the same room from my last admission; my ostomy surgery, all that pain, blood, fear, shock, disbelieve. I am…

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GI Clinic 21.03.17

This has probably been the first time in forever that I haven’t really been bothered about going to see my Gastro. I haven’t really had any problems; I’m not taking any medications, my wounds are all healed, my surgeon is happy with my current progress being made and my stoma seems to be getting into a solid routine. All good on the symptoms front; nothing to report. But, I still attended because I felt it was high time he saw how well I had been doing, what I actually look like when I am well. And it was a good picture.…

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What I’ve Learnt after Six Months with an Ileostomy

    “I’ve learnt that this learning experience isn’t over and won’t ever really be over. And that is okay. I am fine with these challenges because I know I can do them, whatever my stoma throws my way.” Extract from my November post “What I’ve Learnt After Three Months with an Ileostomy” ***   Six months. Half a year. It feels and sounds like a huge amount of time. And to really sit and think about what I was doing six months ago – lying in a hospital bed, attached to so many tubes, waking up from surgery to…

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Surgical Review #2 – 13.02.17

Back to see my amazing surgeon today. Don’t worry, I’m okay! If anything, that’s the reason for seeing him. I am doing so well since surgery, he double checked my blood work, did a MRI scan and a calprotein test to confirm that everything is A-Okay. I’ve briefly discussed my thoughts on ‘remission’ this time around here, and also here. But today it was made official but not at all scary. My MRI scan of my small bowel and pelvis showed no activity of Crohn’s disease. If anything, some parts of my bowel weren’t dilated enough, indicating that the prep…

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