all posts relating to being in hospital – admissions, infusions, appointments

Life Lately | “And Another Thing..”

Do you ever have those moments when you just think ‘What else can be thrown at me?’ Not that I haven’t been feeling okay lately, but its been chock full of just things that need to be sorted and nothing is every simple with me. For one reason or another, every week for a while, I’ve had my blood taken. Sometimes for my IBD monitoring or a potential flare up, my liver levels checking and then for clinics. It’s been pin cushion central, and I can handle that but it’s not normal is it? The reasons for the blood test…


PCOS and IBD: Another Battle – Part I

PCOS –  Polycystic Ovarian Syndrome  – is something that has been with me since I was 17. I was fortunate enough to be diagnosed under private healthcare and it was always explained to me that it was more about self management that anything else. So since 18, I have been on various contraceptive pills – that help aid the control of the condition – trying to find the right one that worked best for me. But when I was diagnosed with Crohn’s disease at 23 and whilst on a good contraceptive that worked – the Evra patch – it seemed…


Life Lately | All This Familiar ‘Newness’

This feels oddly familiar. I’m not sure I like it. I’ve found that this phrase gets said alot in regards to my Crohn’s Disease. Things come and go in waves, in cycles some years and they almost always feel like deju vu. But for the most part, the fact that they are familiar gives me a certain ability to cope with them, time and time again. It sucks that the same things occur on a some-what semi-regular basis but I take comfort with the mantra; “I’ve done it before, I’ll do it again.” A certain piece of mind, if you will. This week,…


The Return of… Everything

You always want to believe your consultant when they say “maybe we’ll be able to go a couple of years without any medications or big issues“. You believe because that is the sort of IBD dream isn’t it; managing without medical intervention? It was for me, back in June at my last appointment; full of confused optimism. Fast forward not even six weeks and I was bed bound, in constant abdominal pain; unsure of what was happening to me. I would suffer for weeks, spending days on end in and out of the hospital, not really getting any answers or…


The Highs and Lows of Hospital Stays

I’ve just spent a week in hospital, unexpectedly. Now I am no stranger to prolonged spells in a hospital bed. But this time, this was different. New city, new hospital, new problems. I am still processing all the new information so bear with me, this isn’t going to be all about what has gone on but more about what its like to spend time in hospital when youre chronically and invisibly ill. Being in hospital has extremes of highs and lows. Yes, even highs! The spectrum of emotion is vast, varied and can hit you without warning or want. Learning…


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