Posts relating to raising awareness and to particular campaigns
Part of the week of daily blogs for #crohnsandcolitisawarenessweek “I’m thankful for my struggle because without it I wouldn’t have stumbled across my strength” Somewhat of a cliche now, but it’s a cliche because it’s true. I was diagnosed at 23 when I knew nothing about anything. Sure, I had graduated university, lived away from home, lived in a foreign…
Part of the week of daily blogs for #crohnsandcolitisawarenessweek I went through all medical options before I turned to surgery to help my IBD. Some days I wonder if I left it too long or was it just right? Some days I wonder what would have happened if I had gone for the clinical trial instead of the resection. But…
Part of the week of daily blogs for #crohnsandcolitisawarenessweek “When they said chronic I didn’t think. They meant every single damn day.” Chronic and invisible. Double whammy. Despite there being so much information out there about the basics of IBD, we as patients still experience misconceptions and misinformation throughout our patient journey. For some this can be the fact that…
Part of the week of daily blogs for #crohnsandcolitisawarenessweek Oh man, I am dirt tired For most, tiredness comes when you’re overdoing it – working too many hours, being social, finding things to do instead of sleep. But when you have a chronic illness, the fatigue is a next level of tiredness. I find myself stopping from saying ‘I’m tired’…
Part of the week of daily blogs for #crohnsandcolitisawarenessweek Invisible illness can mess with your head There, I said it. Once you say it outloud, it’s like duh of course it does but that is as far some go. It’s sort of expected for something some internal to affect your mind. And whilst that’s good to recognise, more needs to be…
Part of the week of daily blogs for #crohnsandcolitisawarenessweek What does having IBD mean? It means talking about poo. It means discussing bodily functions with specialists. It means enduring testings on your digestive system. These are not great experiences, no matter how long you have been diagnosed or how many you’ve had to go through. It means getting diagnosed. It…
Part of the week of daily blogs for #crohnsandcolitisawarenessweek What are Crohn’s & Colitis? Learning that you have been diagnosed with Crohn’s Disease or Ulcerative Colitis may fill you with anxiety, concern, and lots of questions. Even many health care professionals are unfamiliar with Crohn’s Disease and Ulcerative Colitis, it’s important to begin learning all that you can about what…
Something I had never really considered before was; How much involvement do patients have with research within the scope of their conditions? Turns out, lots. Why is this important? Patient & Public Involvement (PPI) is something that happens within all clinical research or clinical trial. And when you think about it, it makes sense – why would you research something,…