Crohns

All posts relating to MY Crohns

Crohns & Colitis Awareness Week – December 5th: Misconceptions

Part of the week of daily blogs for #crohnsandcolitisawarenessweek “When they said chronic I didn’t think. They meant every single damn day.” Chronic and invisible. Double whammy. Despite there being so much information out there about the basics of IBD, we as patients still experience misconceptions and misinformation throughout our patient journey. For some this can be the fact that at a primary level, IBD is confused with IBS. And whilst yes they both are located within the digestive system, that is the end of the similarities. I’ve written about this before, here. If we can get past that hurdle,…

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Crohns & Colitis Awareness Week – December 4th: Fatigue

Part of the week of daily blogs for #crohnsandcolitisawarenessweek For most, tiredness comes when you’re overdoing it – working too many hours, being social, finding things to do instead of sleep. But when you have a chronic illness, the fatigue is a next level of tiredness. I find myself stopping from saying ‘I’m tired’ because this invites so many people to say the same back to me, when really they aren’t feeling the same tiredness as me. My fatigue hits like a brick. My fatigue knocks me sideward and is not solved by a nap or a long lie in.…

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Crohns & Colitis Awareness Week – December 3rd: IBD and Mental …

Part of the week of daily blogs for #crohnsandcolitisawarenessweek There, I said it. Once you say it outloud, it’s like duh of course it does but that is as far some go. It’s sort of expected for something some internal to affect your mind. And whilst that’s good to recognise, more needs to be done. If there is counselling for a cancer diagnosis, why is there nothing similar for IBD diagnosis? I appreciate and understand that a cancer diagnosis is a devastating blow and comes suddenly and swiftly for some. But, in a smilier vein, so does IBD. And as we…

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Crohns & Colitis Awareness Week – December 2nd: IBD Stigma

Part of the week of daily blogs for #crohnsandcolitisawarenessweek What does having IBD mean? It means talking about poo. It means discussing bodily functions with specialists. It means enduring testings on your digestive system. These are not great experiences, no matter how long you have been diagnosed or how many you’ve had to go through. It means getting diagnosed. It means having a conversation with a Gastroenterologist or an IBD nurse about your condition and what they intend to do to treat it, in whatever status it’s in. It means taking medications – some of which can cause some pretty…

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Crohns & Colitis Awareness Week – December 1st: What is IBD?

Part of the week of daily blogs for #crohnsandcolitisawarenessweek What are Crohn’s & Colitis? Crohn’s Disease and Ulcerative Colitis are the major categories of inflammatory bowel diseases (IBD). IBD affects an estimated 300,000 in the UK. These chronic diseases can run in families and they affect males and females equally. While IBD can affect anyone, Caucasians are more likely than other ethnic groups to have IBD. Yet it is largely a hidden disease, and one that causes stigma, fear and isolation – it’s thought that many people with the condition go undiagnosed and suffer in silence. It doesn’t have to be like this.…

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