Crohns

All posts relating to MY Crohns

Nightmares..

It is almost the end of March. I’ve been Crohns symptom free for almost all of March. Besides my blip at work two Saturdays ago, not much has upset my digestive system and even the cloud of Depression has been light and breezy of late. But tonight, out of nowhere, symptoms. Started with that gurgling stomach. Usually in the mornings,…

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Expectations

I know that is it unrealistic to have expectations when it comes to my Crohns, but I can’t help it sometimes. When things were bad, I just wanted to be better. I wanted my new medication to work and I wanted to get back to my normal life. And in a way, I am back, and I am as normal…

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Humira #101

Now, I am not a completely stupid girl, I know that the medication I am on helps me; helps relieve the crohns symptoms, and let’s me go out in to the world and kick ass every day. I know from personal experience that everything else has failed – in one way or another – and this is my option at the…

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Day 13

So, today is the final day of the current Humira cycle. Yes, it ist just gone midnight on a Wednesday, but I for some reason am wide awake. This cycle has felt completely different. I’ve had so many days of feeling so damn good, it is slightly scary. I’m used to my body starting to flag on Day 9 and…

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My disease has become very invisible. I am the Queen of multi tasking at work these days. The depression is hidden too. Six people know about my fears. About my anger and my confusion. They know a limited amount of how hard I struggle every day, with one thing or another. I wish I wasn’t so full of feelings, of…

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GI Clinic – 06.03.12

Had my first ‘normal’ clinic appointment yesterday. And by normal I mean, not following any scans, tests or when I’ve been discharged from the Gastro ward. It was the simplest chat I’ve ever had with my GI, EVER. Checked on my blood test – all fine. Iron is still out the normal boundaries, ‘I’m going to give you the tablets…

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Musing..

Is this too much to ask? Does anyone think this already? I want someone to look at me and think ‘Jeez, she’s been through fucking lots and she’s still standing upright and smiling. And she laughs about it too! How? She does all that whilst being in pain most days? She must be one heck of a strong lady. She…

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Invisability

We all know that IBD is an ‘invisable’ condition, that no one notices, or even understands. I spend a considerable time of late on my appearance. I wonder how I look to other people, to strangers who don’t know me from Adam, that have no idea of the torrent of pain I’ve been through, going through, will expect to go…

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