Crohns

All posts relating to MY Crohns

It was December 15th and I finally felt good. I was a month out of hospital and just had a Humira injection – one of the first amazing few – and was home alone. I came upstairs into my room and got my make up out. It had been months and months since I had even opened the bag and felt any…

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Riiiiight!

Tuesday is the date for my Iron Infusion at the hospital. Ever heard of an iron infusion? No? Me either. It was put into motion at my last clinic appointment, 5 weeks ago. I got home that day to find out what it was. This site and this one provide the best information about it. People who suffer from chronic…

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This was today, again. Me and mom went along to the Endoscopy suite at Good Hope for my Humira appointment with my IBD nurse this afternoon. She got trained by my nurse, Ruth, and had to give me my shot. And you know what? No pain. After a try out with the dummy pen, she was encouraged to do my…

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“Hello..

.. My name is Louise and I have Crohn’s Disease.” As an ongoing topic on this blog, I will be writing about and sharing my experiences when it comes to friendships and revealing your Crohns disease and how to talk about it. As a recently new sufferer, I’ve had to overcome some fears and open my eyes to some realisations…

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Eating

I am in a period of good health with my Crohn’s. But I still get lots of comments about my eating. The most common one is “How can you eat so much food when you have a disease?” I used to be flabbergasted by the audacity of people to comment on my life, my eating habits. Who exactly are you…

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My current diary is almost at its end. Its been an eventful 12 months. I’ve got four more weeks of pages left to fill; my work hours, meetings, counselling, Brownies sessions and dates. I flicked through it last night whilst angry and I found myself laughing at times.Being pulled back into its grasp. All of my big medical problems were…

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Patient v Person?

[I have been reflecting on this subject for a while now, and it seems some what apt to give it some words and a voice right now..] As you know, I spent Thursday afternoon at the hospital being given my Humira shot. No big deal, no big whoop – it was very much needed and appreciated, but I got this…

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The BIG H – revisited, slightly

So yesterday was Humira Thursday. I had an appointment with my IBD nurse to get me fixed up with this injection, phew! It was pretty uneventful. I had tears – as usual now with the Big H, the bastard – and she did my injection for me. Pushed down on the ‘trigger’ and gave me my Crohn’s medication. Thank goodness!…

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