Crohns

All posts relating to MY Crohns

This is Not My First Choice

Monday. This morning I ordered my stoma supplies with my delivery company and my prescription with my GP.  By next week I’ll be organising and putting away another months worth of supplies to get me through August.  August. My stoma was created three years ago this August. The day before my partners birthday – we celebrated my ‘new’ chapter and his life.  I was always very comfortable with my stoma. Never really hated it as a concept, just what it would do to my skin when my new liquid poop burnt my skin. There are ways to cope with that, but what…

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Life Lately | Surgical & IBD Update

Let’s catch up, shall we? I haven’t done a ‘Life Lately‘ posts since I was having my wound dressed each day. That feels like forever ago but it has only been a matter on weeks. So, let’s catch up on everything medical that’s happened since my Vedolizumab at the end of May. A general overview of June can be found here. The whole of June can be split into two camps – feeling well enough when waking up that I feel productive and motivated, and then feeling unwell on waking up that I have to spent the day recovering from whatever…

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High and Low Symptom Days

One of the worse things about IBD is having unexpected flare ups. You could be perfectly find and then out of nowhere, a deep burning pain starts to build. It’s uncomfortable, unpredictable and can last anywhere from minutes to hours. The best we can do is try to always prepare for it – having heat wraps, painkillers and medications, safe food or drink options, and natural remedies on standby. And as much as it sucks, try to remind yourself that what goes up must come down. I’ve lived with Crohn’s Disease for almost a decade now and I still sometimes…

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Reflecting on 2019 – The Six Month Update

Okay. So how did we get to the end of June already? We are half way through 2019 already. Already! I haven’t really had a chance to reflect on the goals I set myself back in January. You might be wondering, why reflect after only six months? Well, performance reviews in employment take place monthly, quarterly, and six monthly; why not personal reflection? I’ve spent the first half of 2019 really unwell and needing surgeries. I can see alot of negatives within that but let’s flip that on its head and find the positives through the struggles. I’m going to be using…

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How do I do Things for Myself when I’m …

Reality check: I sometimes I push myself. Too hard. I do things beyond what my pain level will allow me. I end up in more agony because I do things that I shouldn’t, or should just leave well alone. But I don’t listen, silly me. To some extent, I think most people with chronic illnesses do this. For some it’s doing what is necessary and paying the price the day/s after; knowing it was worth it. It could be attending an event, being social, travelling or simply doing the household chores. “Pushing through” was something I did alot when I…

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