Crohns

All posts relating to MY Crohns

How do I do Things for Myself when I’m …

Reality check: I sometimes I push myself. Too hard. I do things beyond what my pain level will allow me. I end up in more agony because I do things that I shouldn’t, or should just leave well alone. But I don’t listen, silly me. To some extent, I think most people with chronic illnesses do this. For some it’s doing what is necessary and paying the price the day/s after; knowing it was worth it. It could be attending an event, being social, travelling or simply doing the household chores. “Pushing through” was something I did alot when I…

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World IBD Day 2019

  “We know It Takes Guts to talk about Crohn’s and Colitis. This World IBD Day, we are supporting people to start conversations that really matter. Crohn’s and Colitis are invisible illnesses and because of the stigma that surrounds them, thousands of people are suffering in silence. It’s time to speak up.” – Crohn’s and Colitis UK   This year, Crohn’s and Colitis UK have launched a new website – It Takes Guts – for World IBD Day. “Break the silence. It takes guts to talk about Crohn’s and Colitis. But no one can see it until we say it.…

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Post Surgery Check Up

The waiting game Travelled to Stamford this morning to check in with my surgeon following my operation, six weeks and five days ago. I can hardly believe its the middle of May, let alone comprehend that it’s been that long since my surgery back in late March. I have seen my consultant since being discharge from hospital and we regularly email about my symptoms and progress. Despite that interaction, it’s been a while since I attended an actual hospital appointment. He does not mince his words but is careful with what he does say. In the same instance he is…

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Surgery Anniversary

I’ve been thinking alot lately about surgery and it’s sometimes negative reputation and impact on the chronically ill.   When I was first diagnosed with Crohn’s disease and we were discussing treatment options for controlling it, I was positive that I could fight this without the need of surgery. I remained feeling that particular way for many years, even as I went on and came off several medications – noted here as Humira, Azathioprine, Mesalazine, Mercaptopurine, Infliximab and Methotrexate – my resolve to not want or need surgery stayed the same. I continued to have my blood work monitored, my…

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Post Operative Blues: The Emotional Highs & Lows after Discharge …

It has been six weeks since my surgery and officially met a huge scheduled landmark in recovery: “expect to feel recovered and back to almost ‘normal’ after six to eight weeks.” It’s standard procedure to feel better after this long; wounds would have healed by then, the likelihood of any complications decreases with time, and the body would be back into a homeostasis – a relatively stable equilibrium – stance. That being said, that is for the ‘average’ patient, one who fits within the limitations of the criteria for the surgery. However, the need for surgery usually indicates something that needed fixing…

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