Awareness

My adventures in raising awareness – campaigns, world IBD day, ostomy day.

World IBD Day 2019

  “We know It Takes Guts to talk about Crohn’s and Colitis. This World IBD Day, we are supporting people to start conversations that really matter. Crohn’s and Colitis are invisible illnesses and because of the stigma that surrounds them, thousands of people are suffering in silence. It’s time to speak up.” – Crohn’s and Colitis UK   This year, Crohn’s and Colitis UK have launched a new website – It Takes Guts – for World IBD Day. “Break the silence. It takes guts to talk about Crohn’s and Colitis. But no one can see it until we say it.…

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Crohns & Colitis Awareness Week – December 7th: Not All Superheroes …

Part of the week of daily blogs for #crohnsandcolitisawarenessweek “I’m thankful for my struggle because without it I wouldn’t have stumbled across  my strength”  Somewhat of a cliche now, but it’s a cliche because it’s true. I was diagnosed at 23 when I knew nothing about anything. Sure, I had graduated university, lived away from home, lived in a foreign country; but I knew nothing about who I was or what I wanted from my life. Do not get me wrong, I did not want a chronic illness but sometimes, life has a funny way of chucking things at you.…

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Crohns & Colitis Awareness Week – December 6th: Surgery – Treatment Option …

Part of the week of daily blogs for #crohnsandcolitisawarenessweek I went through all medical options before I turned to surgery to help my IBD. Some days I wonder if I left it too long or was it just right? Some days I wonder what would have happened if I had gone for the clinical trial instead of the resection. But then I remember the life I was living prior to surgery. About how I was loosing weight, I was in pain every time I ate and I could not stop sleeping. Then the bleeding happened and I knew surgery was…

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Crohns & Colitis Awareness Week – December 5th: Misconceptions

Part of the week of daily blogs for #crohnsandcolitisawarenessweek “When they said chronic I didn’t think. They meant every single damn day.” Chronic and invisible. Double whammy. Despite there being so much information out there about the basics of IBD, we as patients still experience misconceptions and misinformation throughout our patient journey. For some this can be the fact that at a primary level, IBD is confused with IBS. And whilst yes they both are located within the digestive system, that is the end of the similarities. I’ve written about this before, here. If we can get past that hurdle,…

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Crohns & Colitis Awareness Week – December 4th: Fatigue

Part of the week of daily blogs for #crohnsandcolitisawarenessweek For most, tiredness comes when you’re overdoing it – working too many hours, being social, finding things to do instead of sleep. But when you have a chronic illness, the fatigue is a next level of tiredness. I find myself stopping from saying ‘I’m tired’ because this invites so many people to say the same back to me, when really they aren’t feeling the same tiredness as me. My fatigue hits like a brick. My fatigue knocks me sideward and is not solved by a nap or a long lie in.…

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