Louise Hunt

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Discharge Euphoria

“You can go home today”   The most joyful words that can be uttered during a morning ward round when you have been in hospital for anything more than a couple days. You think back to your home and all the wonderful lovely things that await you – a soft bed. A shower! Fresh pjs and bed sheets. No more bleach smell. Peace, quiet and your creature comforts. But what exactly have you agreed to upon discharge? Have you take too much on? What if you can’t do everything you’ve been asked to do, were you too optimistic?  I’ve named…


IBD & My Relationship with my Parents

Chronic Illness and Family. Being sick definitely changed the dynamic of our family. Diagnosis Day landed a brick in our household that came from nowhere. We didn’t know how to act, we didn’t know how to communicate and we didn’t know how to respond to what I was being told – You have an incurable illness that will be lifelong and difficult at times.  I remember just being glad it wasn’t cancer. I also remember thinking that I would beat this and it would be over soon and thing would go back to normal. We all know, ‘going back to normal‘…


August Goals

How did July’s goals go? Here is what I set myself for the month of July: GOALS: Monitor my IBD symptoms and keep track of ostomy issues. Keep on top of my wound as it gets smaller. Plan some new content. TASKS: Return to Work under a phased fit note. No sense in rushing to go back to ‘normal’ yet. Keep my hydration levels at an optimum. Actually make a start on a new project proposal from last month! Let’s recap… Let’s begin with how Month Four of Recovery went. I honesty had expected to go back to work in July…


July 2019

Let’s Return. Stoma wise; things have been running smoothly with the stoma in July. I’ve noticed abit of weight loss and this means my bags fit abit better than normal. However, the bloat from the veggies and salads prominent in the summer months, have meant that occasionally I get some nasty partial blockages. They have been solved by home remedies so nothing too dramatic to report. Apart from some sore skin from an old template, my skin has been pretty well protected during the heat this month so I’ve seen a greater length between changes. IBD wise; fatigue has been…


Do I Consider Myself Disabled?

Inspired by the KTMY post ‘Am I Disabled? Why you should define chronic illnesses as a disability’ Does ‘Invisible Illness’ Equal ‘Disability’?   Controversial but a hotly debated topic for those within the chronic and invisible illness community. Lots of questions get raised such as: What is a chronic illness?  What is an invisible illness? Should this conditions come under disability? What exactly is disability? How do we measure this? How does labelling those with chronic and invisible illnesses as ‘disabled’ impact on them? How do you define your own disability if you have an chronic or invisible illness? I’ll try…


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