Hello! My name is Louise and I am 31.

I have Crohn’s Disease, a form of Inflammatory Bowel Disease (IBD). I also have an permanent end ileostomy.

I was diagnosed in September 2011 after several months of symptoms that didn’t really make much sense. But if I am really honest, I had been suffering with bowel problems on and off for about a year prior.

I’ve had many hospital admissions; most of them occurring in the first year of my journey with IBD. The rest have been for my surgeries and the period of time in between them during the Summer of 2016.

I’ve tried all of the medication options open to me at the time but chose to have surgery in 2016 to remove a large narrowing in my small bowel. Unfortunately, three months later, I had my colon removed and a stoma created. In March 2019, after almost a year of struggling with my rectal stump, I had it removed and made my stoma permanent; an end ileostomy.

Life since those surgeries has been really great; not without its post-op recovery challenges, but my Quality of Life (QoL) has significantly improved.

I am still ‘accepting’ the changing face of my disease but I have a positive outlook on life; I try to not let the beast control my life and overwhelm me. I hope that this blog tells the truth about everything I struggle with when it comes to a chronic illness and having an ostomy.

It also offers blog series on IBD medications, examinations, procedures as well as daily aspects of stoma care.

My writing comes from a place where I challenge the questions around my own health, my condition – what IBD means to me as an individual patient, as well as the disease as a whole – navigating life with a chronic and invisible illness as well as how that has impacted me mentally and sexually.


  1. January 11, 2013 / 12:56 pm


    First of all, what a fantastic blog you have. I regularly have a read of it and admire how much you are doing to raise awareness of Crohn’s.

    Secondly, I thought you’d be interested to know that I’ve written two books about my own experiences with Crohn’s: ‘Dear Crohn’s’ and ‘The Innocence of Not Wanting to Live or Die’.

    The first book is only short and free to download from my website: http://www.andycarrington.co.uk/dearcrohns

    The second one is longer and available to buy in paperback, as well as in digital form: http://www.andycarrington.co.uk/theinnocence

    Seen as though your blog is Crohn’s-related, I was wondering if you’d be interested in reviewing them, by any chance? It doesn’t matter, particularly, if you consider yourself a “professional reviewer” as I’m just looking to hear what people think; and I thought it’d be great if you could somehow tie your opinions of my books into your blog writing.

    Like I said, the first book is free, so have a look, if you get chance. If you’re interested in reviewing the second book, also, let me know and I really don’t mind emailing you a digital copy over for free.

    Hope to here from you soon.

    All the best,

    Andy (Carrington)

    • Kayli
      January 1, 2015 / 6:26 am

      A little rationality lifts the quality of the debate here. Thanks for coibtiturnng!

  2. tracyrose2013
    May 27, 2013 / 7:36 pm

    Hi Louise,

    Healthline is interested in contributing a guest post to youngcrohns.wordpress.com. We would be open to contributing any blog that would be of interest to your readers. Healthline bloggers have been featured on a variety of sites including:

    Washington Times: http://communities.washingtontimes.com/neighborhood/tango-mind-and-emotion/2012/aug/10/how-healthy-choices-easy/
    Natural News: http://www.naturalnews.com/036515_diabetes_strawberries_prevention.html
    Patch.com: http://strongsville.patch.com/blog_posts/where-and-what-to-eat-in-cleveland-to-beat-the-winter-blues

    Please let me know if you have any questions. Thank you in advance for your consideration.

    Warm Regards,

  3. July 8, 2014 / 3:46 pm

    Hi Louise! My name is Cameron Von St. James and I had a quick question for you & was wondering if you could please email me when you have a free moment. Thanks! I really hope to hear from you soon and appreciate you taking the time. ☺ cvonstjames AT gmail DOT com

  4. ellie
    March 18, 2015 / 11:28 pm

    I hope you’re doing ok at the moment Louise. Your blog has saved me a little tonight, I’m in a bad place with my Crohn’s and mental well being, but reading your blog was like looking into a mirror, I understand completely and it made me feel less alone. x

Leave a Reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Looking for Something?